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	<title>Migraine Journey &#187; AHDA</title>
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	<description>mindbloggering about life &#38; migraine</description>
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		<title>Just do it for Migraine!</title>
		<link>http://wordmetropress.com/migrainejourney/2012/03/14/just-do-it-for-migraine/</link>
		<comments>http://wordmetropress.com/migrainejourney/2012/03/14/just-do-it-for-migraine/#comments</comments>
		<pubDate>Thu, 15 Mar 2012 03:30:30 +0000</pubDate>
		<dc:creator>Betsy</dc:creator>
				<category><![CDATA[Activist Adventures]]></category>
		<category><![CDATA[Migraine]]></category>
		<category><![CDATA[advocacy]]></category>
		<category><![CDATA[AHDA]]></category>
		<category><![CDATA[Alliance for Headache Disorders Advocacy]]></category>
		<category><![CDATA[Congressional migraine hearings]]></category>
		<category><![CDATA[U.S. Congress]]></category>

		<guid isPermaLink="false">http://wordmetropress.com/migrainejourney/?p=678</guid>
		<description><![CDATA[During the last three years, no matter where I have been or am in my crazy life, I strive to keep up with migraine news and pass along information and activities for us as migraineroes and our loved ones. I&#8217;ve found myself more active on facebook and Twitter recently simply because they&#8217;re quicker. But some important [...]]]></description>
			<content:encoded><![CDATA[<p>During the last three years, no matter where I have been or am in my crazy life, I strive to keep up with migraine news and pass along information and activities for us as migraineroes and our loved ones. I&#8217;ve found myself more active on facebook and Twitter recently simply because they&#8217;re quicker. But some important share items require more than 140 characters or a brief wall post.</p>
<div id="attachment_684" class="wp-caption alignleft" style="width: 160px"><img class="size-thumbnail wp-image-684" title="Clouds over SMA" src="http://wordmetropress.com/migrainejourney/wp-content/uploads/2012/03/IMG_1871-e1331779834234-150x282.jpg" alt="" width="150" height="282" /><p class="wp-caption-text">Help lift the clouds over migraine - sign the Petition please, photo ©2012</p></div>
<p>First, if you and your family and friends have not yet signed the AHDA&#8217;s (Alliance for Headache Disorders Advocacy) <a href="http://act.allianceforheadacheadvocacy.org/5624/urge-congressional-hearings-on-impact-migraine-headache-disorders/?src=POHT010812" target="_blank">petition for Congressional hearings</a> on migraine and other headache disorders, please, please, please do so now. The deadline is March 27 and the goal is a modest 20,000 signatures &#8212; a small number considering an estimated 36 million people in the U.S. alone have migraine.</p>
<p>Teri Robert has created <a href="http://www.healthcentral.com/migraine/c/123/151207/congressional" target="_blank">FAQs about the petition</a>, but there should be no questions &#8212; it is brief, simple, and takes very little time to do. Congressional hearings could further all the efforts of migraine advocacy &#8212; understanding, additional research and improved treatments for migraine. So please, just do it. And then ask all your friends and family to do it, too.</p>
<p>Secondly, I wanted to re-list current and some new sites and migraine groups (more are on the resources page of this blog) in case you haven&#8217;t seen them, want to share with others, or are able at any time to donate dollars (every little bit helps):</p>
<p>Teri Robert is active as ever on Health Central&#8217;s<span style="text-decoration: underline;"> <a href="http://www.healthcentral.com/migraine" target="_blank">Migraine </a><span style="color: #0000ff; text-decoration: underline;"><a href="http://www.healthcentral.com/migraine" target="_blank">Connection</a></span></span>, various blogs<a href="http://www.terirobert.com/" target="_blank"> listed here</a> &#8230; and has started<a href="http://terirobert.typepad.com/inspiration-strength-hope/" target="_blank"> a new blog</a> with a spiritual slant with another wonderful migraine and health advocate, Ellen Schnakenberg.</p>
<div id="attachment_685" class="wp-caption alignright" style="width: 160px"><img class="size-thumbnail wp-image-685" title="Door in SMA" src="http://wordmetropress.com/migrainejourney/wp-content/uploads/2012/03/IMG_1878-e1331780063230-150x273.jpg" alt="" width="150" height="273" /><p class="wp-caption-text">You can open the door to migraine information and support and be proactive, photo ©2012</p></div>
<p>The <a href="http://migraineresearchfoundation.org/" target="_blank">Migraine Research Foundation</a> always offers reliable information while making great strides in migraine research. Donate if and when you can.</p>
<p><a href="http://migraine.com/" target="_blank">Migraine.com</a> has a great group of writers and is amassing a ton of good information.</p>
<p><a href="http://www.themigraineproject.com" target="_blank">The Migraine Project</a> &#8212; yes, a documentary film about migraine in the making!</p>
<p><a href="http://www.wegohealth.com/" target="_blank">WEGO Health</a> for migraine and health activists, advocates and bloggers.</p>
<p><a href="http://ubiqihealth.com/migraine-tracker/" target="_blank">ubiqi health</a>- this is not an endorsement because I haven&#8217;t tried their migraine tracker, but if you&#8217;re a digital buff, you might want to check it out.</p>
<p>I still rely on the information provided by Diana Lee at <a href="http://somebodyhealme.dianalee.net/" target="_blank">SomebodyHealMe </a>and James at  <a href="http://headacheandmigrainenews.com/" target="_blank">Headache &amp; Migraine News Blog</a>. There are also some great facebook pages and new migraine blogs, so please contact me with any I can add to my blog list here (I know I&#8217;m missing many), check my resources page, and connect with migraine participants on facebook and Twitter if you&#8217;re active there. Many helpful resources are out there for you.</p>
<p>Now go sign<a href="http://act.allianceforheadacheadvocacy.org/5624/urge-congressional-hearings-on-impact-migraine-headache-disorders/?src=POHT010812" target="_blank"> the petition</a> &#8212; please and thank you!</p>
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		<title>Express Migraine to Congress!</title>
		<link>http://wordmetropress.com/migrainejourney/2009/10/07/express-migraine-to-congress/</link>
		<comments>http://wordmetropress.com/migrainejourney/2009/10/07/express-migraine-to-congress/#comments</comments>
		<pubDate>Wed, 07 Oct 2009 20:52:35 +0000</pubDate>
		<dc:creator>Betsy</dc:creator>
				<category><![CDATA[Activist Adventures]]></category>
		<category><![CDATA[Migraine]]></category>
		<category><![CDATA[Migraine Expressions]]></category>
		<category><![CDATA[advocacy]]></category>
		<category><![CDATA[AHDA]]></category>
		<category><![CDATA[Alliance for Headache Disorders Advocacy]]></category>
		<category><![CDATA[Cindy McCain]]></category>
		<category><![CDATA[Congressional migraine hearings]]></category>
		<category><![CDATA[headache disorders]]></category>
		<category><![CDATA[migraine art]]></category>
		<category><![CDATA[migraine disease]]></category>
		<category><![CDATA[migraine literature]]></category>
		<category><![CDATA[migraine poetry]]></category>
		<category><![CDATA[U.S. Congress]]></category>

		<guid isPermaLink="false">http://wordmetropress.com/migrainejourney/?p=325</guid>
		<description><![CDATA[Express Migraine to Congress! Anyone can purchase a book for a member of Congress to promote awareness and migraine research advocacy here: http://www.wordmetropress.com/congress.html. Simply make a note in the PayPal purchase form which member of Congress you would like to receive your book...]]></description>
			<content:encoded><![CDATA[<p>Our <a title="Congress &amp; Migraine page" href="http://www.wordmetropress.com/migrainejourney/?page_id=337" target="_blank">&#8216;Express Migraine to Congress!&#8217;</a> campaign is launched at the wonderful suggestion of Vicki Gewe!</p>
<p>Vicki sent a book to Tom Harkin (D-IA), Chairman of the Senate HELP Committee, and I sent a copy to each of my senators, Barbara Boxer and Dianne Feinstein. Seven books are on their way to Congress now!</p>
<p><a href="http://wordmetropress.com/migrainejourney/wp-content/uploads/2009/10/cover72small.jpg"><img class="alignleft size-full wp-image-416" title="cover72small" src="http://wordmetropress.com/migrainejourney/wp-content/uploads/2009/10/cover72small.jpg" alt="cover72small" width="83" height="105" /></a>AND for every book sold in this effort, we will donate $1 to the Alliance for Headache Disorders Advocacy. You can make a dual impact with your purchase.</p>
<p>Anyone can purchase a book for Congress to promote awareness and migraine research here: <a onmousedown="UntrustedLink.bootstrap($(this), &quot;1ae62de642308d92665ec2c99b9d7f83&quot;, event)" rel="nofollow" href="http://www.wordmetropress.com/congress.html" target="_blank"><span>http://www.wordmetropress.</span>com/congress.html</a>. Simply make a note in the PayPal purchase form which <a title="Senators" href="http://www.wordmetropress.com/migrainejourney/?page_id=346" target="_blank">Senator</a> or <a title="Representativs" href="http://wordmetropress.com/migrainejourney/?page_id=390" target="_blank">Representative</a> you would like to receive your book.<span id="more-325"></span></p>
<p>Members of the Senate Health, Education, Labor and Pensions (HELP) Committee, which oversees the National Institutes of Health are listed, and members of the Health Committees are indicated with an asterisk. So you can target a committee member or Congress person of your choice.</p>
<p>I&#8217;ll display recipients&#8217; names or districts in blue as they&#8217;re chosen so we don&#8217;t duplicate efforts.</p>
<p>Along with your book we&#8217;ll send a letter (See Congress letter page) with your name, address and purpose or if you wish to write your own letter and e-mail it to me, I can include that.</p>
<p>The Momentum for Migraine is building! More articles appear in the media as more public people speak up as migraineurs. Cindy McCain has entered the fray as a migraine advocate, and as Teri Robert has mentioned, the <a title="AHDA" href="http://www.allianceforheadacheadvocacy.org" target="_blank">Alliance for Headache Disorders Advocacy (AHDA)</a> is planning another Headache on the Hill event.</p>
<p>It&#8217;s a great time to help Congress understand how much migraine has been neglected and how much attention and funding it needs.</p>
<p>Thank you so much for all you do for migraine understanding and advocacy!</p>
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