During the last three years, no matter where I have been or am in my crazy life, I strive to keep up with migraine news and pass along information and activities for us as migraineroes and our loved ones. I’ve found myself more active on facebook and Twitter recently simply because they’re quicker. But some important share items require more than 140 characters or a brief wall post.
First, if you and your family and friends have not yet signed the AHDA’s (Alliance for Headache Disorders Advocacy) petition for Congressional hearings on migraine and other headache disorders, please, please, please do so now. The deadline is March 27 and the goal is a modest 20,000 signatures — a small number considering an estimated 36 million people in the U.S. alone have migraine.
Teri Robert has created FAQs about the petition, but there should be no questions — it is brief, simple, and takes very little time to do. Congressional hearings could further all the efforts of migraine advocacy — understanding, additional research and improved treatments for migraine. So please, just do it. And then ask all your friends and family to do it, too.
Secondly, I wanted to re-list current and some new sites and migraine groups (more are on the resources page of this blog) in case you haven’t seen them, want to share with others, or are able at any time to donate dollars (every little bit helps):
Teri Robert is active as ever on Health Central’s Migraine Connection, various blogs listed here … and has started a new blog with a spiritual slant with another wonderful migraine and health advocate, Ellen Schnakenberg.
The Migraine Research Foundation always offers reliable information while making great strides in migraine research. Donate if and when you can.
Migraine.com has a great group of writers and is amassing a ton of good information.
The Migraine Project — yes, a documentary film about migraine in the making!
WEGO Health for migraine and health activists, advocates and bloggers.
ubiqi health- this is not an endorsement because I haven’t tried their migraine tracker, but if you’re a digital buff, you might want to check it out.
I still rely on the information provided by Diana Lee at SomebodyHealMe and James at Headache & Migraine News Blog. There are also some great facebook pages and new migraine blogs, so please contact me with any I can add to my blog list here (I know I’m missing many), check my resources page, and connect with migraine participants on facebook and Twitter if you’re active there. Many helpful resources are out there for you.
Now go sign the petition — please and thank you!